Lüdenscheid. Pain, fatigue, helplessness. The women and men carry
through.Wimp, hypochondriac whiner - the environment is disturbed.
Fibromyalgia whirls life.
One to two million people in Germany, mostly women aged 35 years,
suffering from the chronic disease with the difficult pronounce names.
Fibromyalgia means severe muscle pain, tension, insomnia, loss of
power. "Life is not predictable. If you normally live one days, you
will be punished for six days. That's cruel, "says Gudrun Zimmermann.
The men and women in their discussion group to vote. They look
healthy, but they are not. In the group they tell how they try to "get
a life each day on the new series."
Since November 2010 Roland Mueller directs the circle. He knows, he is
concerned. Last year he was diagnosed with fibromyalgia. "Finally," he
says today.The Rheumatism League Lüdenscheid became the catch basin.
Glad were the men and women from Lüdenscheid and environment to be
able to dock here.
They were labeled as Imaginary Invalid. "The search for the diagnosis
was terrible," describe it all the way through the "medical machine".
"We are all getting older," said one comment on the complaints. "There
are doctors who say this is not a disease. There are doctors who say
it could be fibromyalgia - and then ask: But what you want with the
diagnosis, "says Roland Mueller.
"Also, it is difficult for doctors"
He wanted certainty in order to deal with the disease. The typical
odyssey began. It is a quest for the famous needle in the haystack,
clearly rheumatic at 300 to 400 different diseases. Admits Smith "For
the doctors is difficult" one. The track search among other things, to
the exclusion principle: The medical history will be rolled out in
detail at the physical examination, pressure points are called "tender
points" through-checked.
And then? "There is no cure, there is only relief" to know the people
concerned. They hope to overcome the fear of the night, when they can
not sleep for pain. They hope to find out which drugs work. They hope
to learn but also how they manage without high doses, because they are
afraid to become addicted to painkillers.
Long-term programs are needed that address the needs of patients. An
example is the function of training that is offered by the
rheumatology division. Not the performance that counts, trained
therapists assist those affected rather the process of obtaining basic
bodily functions and build. More training opportunities for
fibromyalgia patients want Müller and his discussion group. Mueller
wants to bring the group with fibromyalgia experts this week.
One of the victims know all the same: Your illness is not life
threatening and does not destroy the joints. You want to know more,
but - Wolfgang Voss puts it in a nutshell: "Read and learn is one
thing. Important it is to enforce the things also. "